June is Myasthenia Gravis month, for that reason the EuMGA together with our sponsors have made this awareness campaign – Thank you for reading.
Myasthenia Gravis can strike at any age, but is more frequently seen in young women (age 20 and 30) and men aged 50 and older. However, while MG affects both men and women, the diagnostic journey is still longer for women.
In a 2024 Rare Barometer Survey by EURORDIS-Rare Diseases Europe, out of 139 respondents living with Myasthenia Gravis, women had a diagnostic journey of 1.9 years while men had a diagnostic journey of 1.2 years.
Everyone deserves a timely diagnosis; it can be life-changing.
Join us at the European Myasthenia Gravis Association (EuMGA) in raising our voices to raise awareness through our “A Voice for MG” campaign— follow, like and share this post!
hashtag#aVoiceForMG hashtag#MyastheniaGravis hashtag#EuMGA hashtag#RareBarometer
Receiving an MG diagnosis can, unfortunately, take years.
In a 2024 Rare Barometer Survey by EURORDIS-Rare Diseases Europe, it was highlighted that Children and adolescents have an even longer diagnosis journey than adults.
A timely diagnosis is life-changing; raising awareness can help not only those living with undiagnosed MG, but can also help healthcare professionals.
Join us at the European Myasthenia Gravis Association (EuMGA) in raising our voices to raise awareness through our “A Voice for MG” campaign— follow, like and share this post!
hashtag#aVoiceForMG hashtag#MyastheniaGravis hashtag#EuMGA hashtag#RareBarometer
Myasthenia Gravis is a rare disease, invisible and unknown to many, including healthcare professionals.
In a 2024 Rare Barometer Survey by EURORDIS-Rare Diseases Europe, out of 139 respondents living with Myasthenia Gravis, 19% had 8 consultations or more with healthcare professionals before their diagnosis was confirmed.
MG awareness means a more timely diagnosis and treatment, which can be life-changing.
Join us at the European Myasthenia Gravis Association (EuMGA) in raising our voices to raise awareness through our “A Voice for MG” campaign— follow, like and share this post!
hashtag#aVoiceForMG hashtag#MyastheniaGravis hashtag#EuMGA hashtag#RareBarometer
Share
