The European Reference Network for Neuromuscular Diseases (EURO-NMD) has developed a detailed poster about the Myasthenia Gravis (MG) patient journey in 5 steps. The patient journey was elaborated with the help of the MG patients members of the ERN EURO-NMD Neuromuscular Junction Defects working group.
STEP 1: Recognizing the first Symptoms
STEP 2: Getting the right diagnosis
STEP 3: Follow up the disease
STEP 4: Getting the right treatment, including psychosocial support
STEP 5: Getting general support
Managing Myasthenia Gravis is an ongoing, collaborative effort between patients, GPs, specialists, and support organizations. Continuous education, communication, and advocacy are vital to improving the quality of life for those affected by this challenging disease.
Patient journeys dedicated page: Patient Journeys – European Reference Network – EURO-NMD (ern-euro-nmd.eu)
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